Day 3 in the hospital, on day 2 of 4 of twice daily infusion of Etoposide (over two hours) and Cytarabine (over one hour)–for a total of six hours of infusions a day for four days, spaced about 12 hours apart. So far, the infusions of chemo meds haven’t been hitting me all that hard, but they’re not expected to until next week. Had a little bit of unsettled stomach yesterday and a reaction to the first day’s alcohol-infused carmustine, but that’s been it.
Interestingly, my sense of taste is still coming back in teeny dribs and drabs, despite the kepivance. Still can’t taste my food, but really, really close to almost being able to taste my food.
But what’s really getting me right now is the sleep, or rather the lack thereof. They’ve got me scheduled for these twice daily three-hour infusions at 10AM and 10PM (with pre-meds about an hour before), so the infusions don’t finish until after 1AM.
Between being woken up in the early AM for pre-meds, vital checks, labs, etc., and awakened in the PM by by squawking IV pumps, med bag changes, and more vitals checks, I can’t get more than a few hours, if I’m very, very lucky, of shut-eye at night. And since I’m also a morning person–an extreme morning person, honestly–it’s really hard for me to go back to sleep once I’m awakened in the AM, no matter how bone-weary-exhausted-sleep-deprived I happen to be (stupid human suit).
I got all of four-and-a-half hours of sleep last night. Kept trying to doze off this morning after my 6AM vitals check wake-up, but every hour someone else would come in to give me something, check on something, or ask me something. I finally gave up, out of sorts and groggy, and demanded some coffee. If they won’t let me sleep, then by god, I may as well be caffeinated about it.
I…I think I might be getting kinda surly. I yelled at the poor lady who wanted to clean my room to “PLEASE COME BACK LATER!” Then I felt so guilty, I couldn’t go back to sleep.
And I’ve only been here for three days.