PET scan results in: Still Not Dead. Kill it With FIRE

Saw my radiologist at Emory with the results of last week’s PET scan.

It wasn’t clean. There are still active cancer cells in the tumor location in my nasopharynx/sinuses.

I was really trying hard not to dwell on these results. After the last PET  scan, I didn’t want to pin my hopes on a clean scan, but even with me actively working not to think about it and telling myself that it was unlikely the two rounds of R-ICE chemo would have put me in complete remission, it was still a blow, hearing it.

I did get to see the PET scan this time, as well as the initial scan we did last November and the one we did in March. The good news is that the active cancer area is much smaller compared to both, but then again, if it weren’t, we’d be in much worse shape moving forward. It was kind of astounding seeing the scan from November, how huge the tumor was, how much of my skull it occupied.

These results don’t change our next steps, which is to irradiate the whole tumor area and Kill it With FIRE. It does, however, mean that the radiation course is going to be a little more aggressive, possibly take five or six weeks instead of four, expose me to more radiation all told–which, in a not-funny correspondence, will increase my chances of getting another cancer, leukemia, some years down the road as well as increase the potential side effects. There’s also a chance that whatever is making these stubborn cancer cells not succumb to the chemo will also make them resistant to the radiation, and I won’t go into the stem cell transplant in complete remission. My odds, of course, are much better going into the transplant in complete remission versus partial.

Tomorrow I go in for a CT scan and mask fitting for my radiation treatments. We’re aiming to start radiation next week. 

I’m so tired of being sick. Fuck cancer.

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31 Responses to PET scan results in: Still Not Dead. Kill it With FIRE

  1. Hugs. You are strong. You will beat this thing.

  2. praying. Sending healing love your way.

  3. Kelley Harkins says:

    You know I’m with you on this. You’ve already helped me so much. Let me know what I can do to help you! Even if its just cute animal pictures

  4. This is not what you and Matthew wanted to hear. Neither did your friends. It stinks. Sending prayers and positive thoughts for healing.

  5. Kathleen Liu says:

    Thinking of you, Eugie -

  6. Val Grimm says:

    Kick ass, Eugie.

  7. Oh, sweetie. Such a challenge. We’re all holding you up in our thoughts.

  8. I will be calling on the old gods to make you well. Peace & blessings. Ashe.

  9. Jeri Klein says:

    Blessed be pretty lady. Blessed be <3

  10. Melissa Mead says:

    Sending good thoughts for you.

  11. Keyan Bowes says:

    Thinking of you and sending good thoughts

  12. Fuck cancer, indeed. Thinking of you.

  13. I have no words other than I’m thinking of you and sending positive energy your way … and as you say … ‘Fuck cancer’ …

  14. Kenny Soward says:

    Indeed thinking of you, Eugie.

  15. Diana Munoz Stewartd says:

    You WILL kill it with fire.

  16. Lisa Rains says:

    Praying for a healing

  17. Janice Clark says:

    It’s been a long, frustrating battle and it doesn’t appear to be over yet, but hang in there. You can beat this thing.

  18. Suzanne Church says:

    Fuck cancer and the horse if rode in on.

    And big hugs for you, Eugie.

  19. all the prayers and positive energy I can give are your dear. Hang in there you can beat it.

  20. Tina Grace says:

    <3 *hugs tight* <3

  21. tight hugs from us! Hang in here!!

  22. Oh honey, fuckity fuck. (((Hug)))

  23. I love you. So very much.

  24. Anita Allen says:

    Damn girl! Still, I guess it gets tenacity from you. You will win however. Your tough as all get out. *hugs*

  25. We’re rooting for you.

  26. Fucking hell. Kill it with fire, indeed.

  27. Jakob Drud says:

    Fuck cancer, and burn it!

  28. Amy Herring says:

    Want you all better. Persevere!
    <3

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